Author Topic: Time to come out into the open  (Read 8120 times)

bogstandard

  • Guest
Time to come out into the open
« on: November 18, 2009, 03:24:13 AM »
I would like to take the opportunity to thank a few very special people on this site, in fact, not people, I would call them true friends, even though I have never met a few of them.

Earlier in the year, my wife was diagnosed with cancer, not one, but five different types, and each one very life threatening. In fact the specialists gave her very little chance of reaching Christmas.

To cut a very long story short, she was referred to 'The Christie'. Less than an hours journey from our home.

http://www.christie.nhs.uk/

Which is classed as one of the world leaders in cancer treatment.

No-one is ever called by their surname, it is all first name basis, in fact a few weeks ago, when they found out it was my wifes birthday while she was having treatment, they organised a makeshift birthday party, complete with cake.

I am unable to stay with her in the hospital, because it is just too painful for me physically to be there, so my daughter stays with her during the very long chemotherapy sessions (around 6 to 7 hours).

Last week, Mal, my wife had a series of scans to check how things are progressing, and yesterday, she called me from Christie and told me that they had actually managed to put her into remission, which means that she is now, not curable, but treatable, to try to keep things under control. There are a couple of stubborn bits, like the cancer in certain parts of her bones, but they told her that they should be able to control that.

I personally have been struggling over the last few months, trying to look after her because of my own maladies, and also because of the help I was getting was very sporadic, as a few members on here know, that when they want to visit, anyone who has even a sniffle cannot come anywhere near, because even a slight chill could have seen Mal in dire circumstances. We have been living in a cocoon, and will have to remain that way for a few more months yet. It is very difficult for us, as normally we have an open house where everyone is made welcome, and we used to have many visitors every day. Seeing just a few people a week has really changed our complete lifestyle. Our telephone bill is astronomical, as Mal seems to have it glued permanently to the side of her head, keeping in touch with all our friends.

I would like to thank all those friends for the support and understanding that they have given me personally over the last few months, without someone to talk to and explain my situation, I would have been in real mental and physical trouble.

We are still a long way from being 'safe', but at last we can see the light at the end of the tunnel.


Thanks again my friends.



John

Offline Stilldrillin

  • Global Moderator
  • Hero Member
  • *****
  • Posts: 4972
  • Country: gb
  • Staveley, Derbyshire. England.
Re: Time to come out into the open
« Reply #1 on: November 18, 2009, 03:51:08 AM »
John, Mal.

Both of you are in our thoughts and prayers.

David & Christine.
David.

Still drilling holes... Sometimes, in the right place!

Still modifying bits of metal... Occasionally, making an improvement!

Offline dsquire

  • In Memoriam
  • Hero Member
  • *****
  • Posts: 2275
  • Country: ca
  • Kitchener, Ontario, Canada
Re: Time to come out into the open
« Reply #2 on: November 18, 2009, 04:09:45 AM »
John

It is hard to put feeling into words sometimes. While I am half a world away I feel much closer to you and Mal than that. My thoughts and prayers will be with you and Mai and hopefully that light at the end of the tunnel will keep getting brighter. Hopefully Christmas this year will have a much brighter glow than you thought several months ago.

Keep well John and Mal.

Don
Good, better, best.
Never let it rest,
'til your good is better,
and your better best

Offline Gerhard Olivier

  • Sr. Member
  • ****
  • Posts: 314
Re: Time to come out into the open
« Reply #3 on: November 18, 2009, 04:17:00 AM »
John and Mal

I didn't know what was happening but knew something was amiss, I told my wife Erika and she always asks about you everythime I come away from the computer.  I know I speak for both of us when I say that it is wonderfull that you have some good news and our we both have and will be thinking of you.

Gerhard and Erika
Guernsey
Channel Islands

Offline John Stevenson

  • In Memoriam
  • Hero Member
  • *****
  • Posts: 1643
  • Nottingham, England.
Re: Time to come out into the open
« Reply #4 on: November 18, 2009, 04:47:52 AM »
John,
I won't go into any sympathy here, this is all dealt with off list.
However seriously have a look at Talk Talk, I swapped from BT to them two years ago and I currently pay them £27 per month, this is a bit higher than they advertise but i have a couple of extra's on.
I get free national and international calls 24 / 7 plus a free broadband, all for this price,
some calls are extra like to mobiles but if you stick to land line it doesn't go above this.

I use this for business and two years ago I was paying BT £150 to £200 per quarter plus extra for broadband.

John S.
John Stevenson

bogstandard

  • Guest
Re: Time to come out into the open
« Reply #5 on: November 18, 2009, 05:15:21 AM »
Many thanks gents for your replies, but in all honesty, sympathy is not what we are after, even though the well wishes are most welcome.

We have tried to be very positive, especially Mal, who would not take failure as an option. She even lays into people as soon as they try to be negative, including myself when I had to broach difficult topics and decisions.

I wanted to make it known for two reasons, the first was to publicly thank the people with whom I have been in contact, and who have given us great support thru our very dark times, and it will also explain why my posting has been a little haphazard over the last few months. I was using what time I could get in the shop as a stress relief for myself, and it worked great, even if it was only for half an hour.

Until you find yourself in a situation like this (and I wouldn't wish it on anyone) you don't realise that having a release, even for a short time, really helps in coping with stressful times.


John S.

Thanks for the heads up.

I actually 'fixed' the phone problem the yesterday, I can get as many free to landline calls, whenever we need them, for a small monthly fee.

It was one of those jobs that needed sorting, but I had other things to worry about at the time.


John

Offline Darren

  • Madmodder Committee
  • Hero Member
  • *****
  • Posts: 3795
  • N/Wales
Re: Time to come out into the open
« Reply #6 on: November 18, 2009, 05:57:46 AM »
John,

Just like to add to our private conversation yesterday that I told Helen the good news as she has been asking of Mal & yourself frequently. I think it's one of those inner fears that effects us all these days.
The spark in your voice as we spoke was almost overwhelming, even for me who tends to have a wall having suffered for many years with my own ailments no doubt.

It was wonderful to receive the news and please give my regards to Mal who supprised me the other weekend. She sure is a rock and good on her  :thumbup:
You will find it a distinct help… if you know and look as if you know what you are doing. (IRS training manual)

Offline andyf

  • In Memoriam
  • Hero Member
  • *****
  • Posts: 1795
  • Country: gb
    • The Warco WM180 Lathe - Modifications
Re: Time to come out into the open
« Reply #7 on: November 18, 2009, 06:58:04 AM »
John, having been through it with my Chris, I know what you have been going through. Mal could not have received better treatment anywhere else than Christies. Chris was treated there, and considering that it deals only with cancer cases, the atmosphere is amazingly optimistic, due to the esprit de corps of the staff. As you say, people are treated as people, not just as cases. Chris's mother is receiving treatment there now, and the fact that her life expectancy cannot be measured in decades - she was 91 last Sunday, though you wouldn't guess it - has not made one iota of difference to the care she is receiving.

Don't know if there are any Joseph Holts pubs in Crewe, but if there are, bear in mind that a portion of their profits goes to the Christie, so fundraising can be combined with fun.

I hope things go better for both of you from now on.

Andy
Sale, Cheshire
I've cut the end off it twice, but it's still too short

Offline spuddevans

  • Global Moderator
  • Hero Member
  • *****
  • Posts: 1618
  • Country: 00
  • Portadown, Northern Ireland
    • My Photo website
Re: Time to come out into the open
« Reply #8 on: November 18, 2009, 07:38:27 AM »
Until you find yourself in a situation like this (and I wouldn't wish it on anyone) you don't realise that having a release, even for a short time, really helps in coping with stressful times.

Now aint that the truth. Not that I am in anything like the situation that you and Mal are dealing with, nor can I fully imagine what it is like, but I do agree with the truth of the above statement. Looking after a member of your family who is seriously ill can really take a toll on the carer, and you do need to take even just a little time to "recharge" so that you can carry on giving the level of care needed.

I join with everyone else here in wishing that everything will go as well as it possibly can for both Mal and yourself.


it will also explain why my posting has been a little haphazard over the last few months. ........

I really dont think that you, or anyone else for that matter, needs to explain themselves with regard to their posting habits. Just take whatever time you need to care for your family, that is far more important than keeping up the post-rate on a forum.


Tim
Measure with a micrometer, mark with chalk, cut with an axe  -  MI0TME

Offline Bernd

  • Madmodder Committee
  • Hero Member
  • *****
  • Posts: 3688
  • Country: us
  • 1915 C Cab
    • Kingstone Model Works
Re: Time to come out into the open
« Reply #9 on: November 18, 2009, 09:23:31 AM »
John,

I had a feeling something wasn't quite right. I had put 2 and 2 together after a while and came up with my own conclusion.

I figured in time you would tell all of us. I'm glad to hear that Mal will be OK. Not easy what you have gone through in the last few months. I'm sure it will still be ups and owns on the journey to come. Just let it be known that we are here to support you and Mal.

Give Mal a big "smootch" from all of us and give her our best. Tell her that we are all pulling for her to get better. And you, you old goat hang in there.

Best regards,
Bernd

P.S. I was never one for writing such things and find it hard to express myself in situtations like this.
Route of the Black Diamonds

Offline mklotz

  • Sr. Member
  • ****
  • Posts: 260
  • Country: us
  • LA, CA, USA
    • Software For People Who Build Things
Re: Time to come out into the open
« Reply #10 on: November 18, 2009, 11:47:40 AM »
John,

Please tell your dear wife that there are some uncouth colonials in Los Angeles who are wishing her all the best in her struggle.

Please take care of yourself, too, John.  With such a mental burden, it's easy to neglect yourself and that's something neither we nor Mal want to see happen.
Regards, Marv

Home Shop Freeware
https://www.myvirtualnetwork.com/mklotz

Offline John Hill

  • The Artful Bodger
  • Madmodder Committee
  • Hero Member
  • *****
  • Posts: 2016
  • Country: nz
Re: Time to come out into the open
« Reply #11 on: November 18, 2009, 02:03:53 PM »
Thank you for putting us in the picture John I know it could not have been easy. 

Please assure Mal that with the international division of MadModders on the job she can expect good vibes 24 hours a day and we are all confident that remission will be rather long term.

Mal is in good hands but you need to take care of yourself John, Bandit too of course.

Best wishes from these shakey isles.




From the den of The Artful Bodger

Offline CrewCab

  • Madmodder Committee
  • Hero Member
  • *****
  • Posts: 851
Re: Time to come out into the open
« Reply #12 on: November 18, 2009, 04:55:34 PM »
As you know we are all delighted with this news John, wish Mal all the best ......  and now ........... look forward to Christmas, all of you  :clap:

I said it to John when I got the message via email on my phone at work ......... I shed a tear of joy, truly wonderful news  :ddb:

CC ........... aka Dave  :beer:

Offline ozzie46

  • Sr. Member
  • ****
  • Posts: 260
  • Country: us
Re: Time to come out into the open
« Reply #13 on: November 18, 2009, 08:02:55 PM »

 John, you and Mal are in my thoughts and prayers. We just lost my wifes sister to brain cancer so I am well aware of what you are going through.

  Glad to here she is in remission. Hope things go well for the both of you in the coming months and years. Very glad to hear of Mals can-do attitude.
  
  Believe it or not that is a large part of the battle.

  All my best, Ron
« Last Edit: November 19, 2009, 07:49:47 AM by ozzie46 »

Offline cedge

  • Madmodder Committee
  • Sr. Member
  • *****
  • Posts: 327
Re: Time to come out into the open
« Reply #14 on: November 18, 2009, 09:17:10 PM »
John
The news of Mal's remission is wonderful. As said before, her attitude is a huge positive. Hope you're holding up as well. You've both been on my mind daily.

Steve

Offline ieezitin

  • Hero Member
  • *****
  • Posts: 662
Re: Time to come out into the open
« Reply #15 on: November 18, 2009, 09:28:22 PM »
John. I don’t know you or your wife, but I have read and paid attention to your postings for a long time, and you have freely given us advise all the time making it interesting and giving it a little flare, so I feel a little close. Me and my family appreciate you and wish you and yours gods speed. Thank you. God bless your wife.
If you cant fix it, get another hobby.

Offline chuck foster

  • Sr. Member
  • ****
  • Posts: 334
  • Country: ca
Re: Time to come out into the open
« Reply #16 on: November 18, 2009, 09:39:02 PM »
take care my friend, our thoughts and prayers are with you.

chuck
hitting and missing all the way :)

skype:  aermotor8

former hmem member

bogstandard

  • Guest
Re: Time to come out into the open
« Reply #17 on: November 19, 2009, 03:51:17 PM »
Both Mal and myself are astounded at the well wishes you true gentlemen have shown here, and we truly thank you.

Last night (Christies never closes, it operates 24/365), we had a phone call for Mal to see the specialist this lunchtime. Unfortunately, it was too late for us to organise someone to take her, so I took her instead. I know for a fact, that it has already taken it's toll on me, and for a couple of days still to come, but it is all worth it.

Mal will not now be with us for Christmas, because she is scheduled to have very major surgery on 21st December at The Christie, and she won't be home for at least ten days.

This is definitely a very good sign, as only up to a month ago, she had lost so much weight and was so weak, they could not have operated on her no matter what.

Their treatment, and all your well wishes, have worked miracles.

So in our household, Christmas is now cancelled, and will now take place early in the New Year, when she will be on the road to recovery.

So many thanks again

Mal & John, and of course Bandit.

 

Offline John Hill

  • The Artful Bodger
  • Madmodder Committee
  • Hero Member
  • *****
  • Posts: 2016
  • Country: nz
Re: Time to come out into the open
« Reply #18 on: November 19, 2009, 04:00:10 PM »
John, it sounds like you and Mal are firing on all twelve cylinders on this one :thumbup:
From the den of The Artful Bodger

Offline CrewCab

  • Madmodder Committee
  • Hero Member
  • *****
  • Posts: 851
Re: Time to come out into the open
« Reply #19 on: November 19, 2009, 06:45:29 PM »
Christmas is now cancelled

Not really ............... just postponed a little ................ whenever it happens just enjoy it    :beer:

Good luck and best wishes to you all  :thumbup:

CC

Offline Bernd

  • Madmodder Committee
  • Hero Member
  • *****
  • Posts: 3688
  • Country: us
  • 1915 C Cab
    • Kingstone Model Works
Re: Time to come out into the open
« Reply #20 on: November 19, 2009, 07:07:21 PM »
That's great news John.

I'd like to wish you and Mal and of course Bandit a very early and happy Christmas then. Miracles due come true.

Bernd
Route of the Black Diamonds

Offline AdeV

  • Madmodder Committee
  • Hero Member
  • *****
  • Posts: 2434
  • Country: gb
Re: Time to come out into the open
« Reply #21 on: November 19, 2009, 07:29:45 PM »
John - for what it's worth, you & Mal (neither of whom I know at all, except through the projects I watch you do through this forum) have my best wishes. I'd cross my fingers for you (I don't do praying), but it sounds like you've already got everything you need - a positive attitude really can work wonders; mind over matter & all that.
Cheers!
Ade.
--
Location: Wallasey, Merseyside. A long way from anywhere.
Occasionally: Zhengzhou, China. An even longer way from anywhere...